My Journey to Rare - The Well Connected Collective
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My Journey to Rare

If I could choose one word to sum up my life it would be


From a Happy, fun Childhood, into hormonal Teen years, Learning to navigate life and all that it throws at you. Forging out a career in a male dominated environment, travelling the world to having my world turned upside down one thing that never faltered was my positive attitude.

Keep Your Face To The Sun & You Cannot See A Shadow

What led me to my Blogging Journey and Health Coaching Career was my own want of trying to heal myself.
From Mini strokes, chronic fatigue, fibromyalgia, vasco vagal you name it, it was coming thick and fast at me, to then 9 years later a confirmed diagnosis of a rare genetic disease.
Ive had my fair share of sh!t thrown at me and don’t get me wrong not everyday is a positive pants day but I try to see the best in everything and switch things around.

Building a community of like minded people that want to feel in control of their rare genetic disease is what drives me to keep writing, to keep researching and keep sharing my findings.
I believe whilst there may not be a cure for a lot of diseases, there is hope and there is a better way of life.


My Journey to Rare

2013,  an anaphylactic shock with no known cause would cause my world to turn upside down. A young healthy woman in her 30’s, living life to the full a great career, family, full on social life and so much to live for..

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